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Working Out to Fend Off Symptoms of MS

Exercise: Tara Phillippi, 28, finds that improving her fitness helps control the illness.

July 02, 2001|MATTHEW HAY BROWN | HARTFORD COURANT

NEW BRITAIN, Conn. — Tara Phillippi bulls her way through the workout: 30 seconds on the leg press, pushing enough repetitions to exceed the machine's "superior" ranking, then 30 seconds walking in place, then 30 seconds on the biceps-triceps curl for another off-the-charts performance. And on and on the 28-year-old New Britain woman works, straining, sweating, willing herself around the circle of exercise machines: once, twice, three times.

On mornings like these, when she feels healthier than she did as a fitness-crazy college student, Phillippi can almost believe she never fell ill.

As she works her legs, memories of suddenly collapsing while out shopping seem distant. As she flexes her muscles, fears of a future in a wheelchair feel remote.

Phillippi knows there is no cure for her multiple sclerosis--only pauses between flare-ups that may grow more frequent and severe. But she believes her regular exercise has helped to fend off episodes that, in the past, have left her stiff, sore and tired, sometimes unable to walk and, on one occasion, blind. So she rises every morning and makes her way to Curves for Women, the gym she joined last year, to work her way through the routine she hopes will keep her body limber and her endurance strong for whatever MS may throw at her.

"It's a progressive disease, but I believe in mind over matter," says Phillippi, who was diagnosed in 1999. "I have the will. I have the attitude. I'm going to fight this with all I've got."

Phillippi's approach reflects new thinking on MS. Had she been diagnosed just a few years earlier, doctors might have advised her to take it easy. Believing exertion only sapped the strength of MS sufferers, physicians tended to discourage exercise.

Now, in what amounts to a sea change in the conventional wisdom, doctors are encouraging MS patients to work out within their limits to build stamina, mobility and strength. Researchers say this new approach is helping many people live healthier lives.

"Our awareness and understanding of the benefits of exercise have increased greatly in the last decade," says Dr. David S. Rosenblum, a physiatrist and the medical director of the MS clinic at Gaylord Hospital in Wallingford, Conn. "It can improve strength, it can improve function, and, subjectively, people perceive an improvement in their overall health status." (Physiatry is the specialty of physical medicine and rehabilitation that deals with the diagnosis, treatment and prevention of disability caused by acute or chronic disease.)

It remains unclear why the body's immune system begins attacking myelin, the insulating white matter that allows nerves in the brain and spinal cord to fire properly. Destroyed myelin is replaced by hard sclerotic lesions, which can appear in multiple locations, hence the term multiple sclerosis.

The damage can cause tingling and numbness of the limbs, decreases in balance and coordination, slurred speech, blurred vision and general weakness and fatigue. For most patients, symptoms flare and recede, but over time, episodes may recur more frequently, last longer and have a more severe effect.

Phillippi sits squarely in the disease's main target group. MS typically is diagnosed between the ages of 20 and 40; about two-thirds of the more than 330,000 Americans who have it are women.

Phillippi was 24 in June 1997, just a year out of Central Connecticut State University, when she woke up one morning with a 104-degree fever that laid her low for three weeks. On the 21st day, while she was sitting on the couch in her parents' Cromwell, Conn., home, she tried to move her legs but found she couldn't.

"It's the worst feeling in the world," Phillippi says. "It's the point where you go, 'Oh, my God, I can't walk."'

So began an 18-month odyssey, from doctor to doctor, from clinic to hospital, in search of a diagnosis. Phillippi endured blood work, EMGs, CT scans, MRIs, a spinal tap--and a variety of unsatisfying guesses: Epstein-Barr syndrome, Cushing's disease, sciatica, rheumatoid arthritis.

"It's like an emotional roller coaster," says her mother, Pat Phillippi, who would go to her daughter's New Britain apartment before work and rub her legs to help her get started. "Every time we got test results that were negative, you'd breathe a sigh of relief. But we still didn't know what it was."

Through the uncertainty, Phillippi's symptoms--weak legs, poor balance, stiffness and fatigue--waxed and waned. Sometimes she walked with a cane, sometimes with a walker. Or she would go out without any aids and her legs would just give out.

"When you fall, everyone rushes to you," she says. "You have to say, 'You know what? This happens to me all the time.' You pull your head up, walk out to the car, and cry, one more time: 'Why is this happening to me?"'

Doctors at the Yale School of Medicine diagnosed Phillippi in January 1999. At first, she says, it was a relief to finally know what was wrong. Then she started thinking about her future.

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