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'I Love You' Rings in Happy Pair's Ears at Last

THE NATION

Deaf since childhood, couple turn to cochlear implants for sounds of the outside world, their daughter, and each other.

February 15, 2004|Sharon Cohen | Associated Press Writer

MAYWOOD, Ill. — The young couple sat in the small room, waiting for a click on the computer that would transform their lives.

An audiologist adjusted the sound levels, then said, "Go live," activating a microphone on a device hooked on the man's left ear.

On cue, the man's wife spoke.

"I love you," she said softly, her face glowing with an encouraging smile.

"Wow," he exclaimed as he heard a flood of muffled, yet magical sounds.

In six years together, Jenni and Russ Ewald had never communicated this way.

The deaf couple had just taken a giant step into a new world of hearing. They can now enjoy the sound of each other's voices -- and the squeal of their daughter's laughter.

*

Russ and Jenni Ewald grew up without the soundtrack of everyday life. There were no computers beeping, no sirens shrieking, no babies crying.

Both have been profoundly deaf since childhood as a result of meningitis. Jenni wasn't even a year old when she lost her hearing; Russ was 3 when his started to fade.

But both learned to speak as children and also communicated with sign language, lip reading and hearing aids, which amplify sounds but don't distinguish speech. Most of what they heard was low, meaningless noise.

They accepted their limitations, but it wasn't always easy.

"It took a long time ... to say, 'I'm going to be deaf until I die, there is nothing I can do, I'm going to learn to face it ... and make it a part of my life,' " Russ said.

The Ewalds built a good life: They had friends, they had careers, and they had each other.

But along the way, there were frustrations and indignities, from skeptical teachers to skittish employers to wary nurses who wondered if they were up to the challenge of parenthood.

After their daughter, Camille, was born nearly two years ago, Jenni worried about missing important cues from her baby. She decided on a life-altering change: a cochlear implant.

The implant, which has been around since the 1970s, is an electronic device surgically placed under the skin, behind and in the ear. It activates the hearing nerves, allowing sound to be transmitted to the brain.

Hearing with implants isn't perfect, nor instantaneous. Voices sound robotic, at first. For many, it takes patience and practice to understand words.

"The brain has to figure out what to do with all these new sounds," said Candace Blank, an audiologist who works with the Ewalds at Loyola University Medical Center, where the surgery was performed. "It's like hearing a foreign language and having to learn it."

*

Jenni was just beginning to talk when she lost her hearing. Her mother confirmed her suspicions with a test: She crashed metal pan lids together over Jenni's crib. The baby didn't budge.

Jenni adjusted to deafness by learning to speak in a family where sign language was not used. "It was the only way to communicate," she said.

But so much passed her by.

"At holidays, when my family got together, I felt left out," she said through a sign-language translator. "I could understand things when people spoke to me face to face. But I was isolated within my family."

She started falling behind in classes in middle school and took up sign language. But when she was 14, she rejected the suggestion of a cochlear implant: "I didn't want to be the only exceptional deaf person among the crowd I hung out with."

At the time, cochlear implants were less sophisticated and more cumbersome, with wires from ear to waist.

"I felt like I would be mocked if I wore these big long wires," Jenni said.

Her decision, she says, didn't go over well. "My mother was disappointed," she said. "My grandparents were disappointed, especially my grandmother. She prayed for me to hear. She could not accept the fact that I accepted the fact that I was a deaf person."

After Jenni, now 30, married Russ four years ago, they began considering cochlear implants. Their research became more serious after Camille's birth. Jenni recalls one worrisome night when she slept sitting up, not stretched out, because feedback from her hearing aids could muffle sounds from her newborn.

Even so, Jennie sometimes missed Camille's cries because they were too soft to trigger a vibrating, light-flashing monitor. She also couldn't tell if Camille, who has normal hearing, was laughing or fussing. The nervous mother wondered what else she'd miss.

"I became more and more concerned. What kind of communication was I going to have with her growing up?" Jenni said.

But Jenni -- a victims assistance counselor at the Chicago Hearing Society -- worried too about possible negative reactions from deaf friends.

"I thought this would be a test of their friendship," she said.

Cochlear implants are a sensitive issue for some in the deaf community who may feel abandoned, even betrayed, by those who have the surgery, feeling that they'll decimate the rich traditions of the deaf culture.

Jenni's friends were surprised, even shocked, but supportive. "As long as I'm still who I am," she said, "they accept it."

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