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A Mother's Denial, a Daughter's Death

September 24, 2005|Charles Ornstein and Daniel Costello, Times Staff Writers

Before Eliza Jane's death, Maggiore said she had tested neither of her children. Since then, in anticipation of the visit by child welfare officials, she has had Charlie tested three times, and he was negative each time, she said.

"Would I redo anything based on what happened?" she asked rhetorically during an interview this week. "I don't think I would. I think I acted with the best information and the best of intentions with all my heart."


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'Doing a Good Thing'

Maggiore said she once bought the standard line.

HIV would evolve into AIDS. And AIDS, she firmly believed, would kill her.

For months after her condition was diagnosed in 1992, she was depressed and reclusive. Then she plunged into AIDS volunteer work: at AIDS Project Los Angeles, L.A. Shanti and Women at Risk.

Her background commanded attention. A well-spoken, middle-class woman, she owned her own clothing company, with annual revenue of $15 million. Soon she was being asked to speak about the risks of HIV at local schools and health fairs. "At the time," said Maggiore, a slight woman who looks years younger than her age, "I felt like I was doing a good thing."

All that changed two years later, she said, when she spoke to UC Berkeley biology professor Peter Duesberg, whose well-publicized views on AIDS -- including that its symptoms can be caused by recreational drug use and malnutrition -- place him well outside the scientific mainstream.

Intrigued, Maggiore began scouring the literature about the underlying science of HIV. She does not know how she became HIV-positive, but she came to believe that flu shots, pregnancy and common viral infections could lead to a positive test result. She later detailed those claims in her book, "What If Everything You Thought You Knew About AIDS Was Wrong?"

Maggiore started Alive & Well AIDS Alternatives, a nonprofit that challenges "common assumptions" about AIDS. Her group's website and toll-free hotline cater to expectant HIV-positive mothers who shun AIDS medications, want to breast-feed their children and seek to meet others of like mind. One of her tips: Mothers should share their wishes only with trusted family members and doctors who will support their decision to avoid HIV/AIDS drugs and interventions.

She has stayed healthy, she said, despite a cervical condition three years ago that would qualify her for an AIDS diagnosis. In a 2002 article for Awareness magazine, she facetiously refers to it as "my bout of so-called AIDS," saying it coincided "perfectly with the orthodox axiom that we get a decade of normal health before our AIDS kicks in."

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