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On a hero's quest

Filmmakers join a boy with muscular dystrophy on the trip of his life.

August 29, 2007|Karen Day | Special to The Times

Toward the end of "Darius Goes West," the young man who is the subject of the documentary states matter-of-factly, "People want to be me." Unless you are Angelina Jolie, Brad Pitt or blind drunk, few of us could make this claim, but Darius is proved right by the cheering crowds waving at the wheelchair-bound teenager in this unexpected documentary.

Equal parts "Animal House," and "Stand by Me," this buddy flick tells the story of 12 college-age students who contrive with great expectations and minuscule budget to take their friend from Georgia to Los Angeles to get his wheelchair customized on MTV's "Pimp My Ride." It's a comical and poignant tale.

In the movie, playing at Laemmle Music Hall Theatre in Beverly Hills at 8 and 10 p.m. through Thursday as part of an Oscar bid, Darius rolls across the screen like a sonic boom with a smile, shattering the stereotype of disabled kids and embodying a genuine American idol with Duchenne muscular dystrophy, a disease with a 100% mortality rate. To date the movie has won 20 "audience choice" awards at 25 film festivals.

The film is a classic hero's tale stuffed into an RV with a dozen guys and their dirty socks. Granted, the Golden Fleece in this movie has been updated and equipped with "spinners" on the wheels and PlayStation 2, but Ulysses and Luke Skywalker have nothing on 15-year-old Darius Weems. Along with his older brother, Mario, Darius was born with the most common and severe form of muscular dystrophy. Duchenne is the No. 1 genetic killer of children, with all eventually losing control of their muscles and most dying in their late teens and early 20s. Indeed, Mario, who died at 19, is eulogized best by the indomitable spirit of his younger brother in this film.

"The strong one died," Darius recalls about Mario. "So I had to be the strong one." Approximately 1 in 3,500 boys is born with the disease, with two-thirds of the occurrences attributed to genetics, as was the Weems brothers' affliction. One-third of the time, however, the disease strikes randomly.

This is a film about the transforming power of teamwork and the inherent joys and madness of reaching any seemingly impossible goal. Traversing 7,000 miles of highway from Athens, Ga., with a disturbing lack of handicap access proves a large enough challenge to Darius and his crew. A cameo on "Pimp My Ride," however, is completely do-able and way cool, according to fans of MTV's mechanical-makeover hit. The show targets an audience between the ages of 12 and 25, and "Darius Goes West" aims to entertain and inform that same age range, according to Logan Smalley, 25, the film's director. His reasons for cultivating these viewers, however, echo far beyond his age.

It is a movie of pain, both physical and emotional, with a message of hope and deep affection for the raw and sweet parts of human nature. Documentaries have a bad habit of working too hard at jerking tears and preaching for change. More often that not, this broad "nonfiction" genre teeters on the edge of tedious.

Thanks to Smalley's editing and Darius' star quality, the documentary and its back story through development and disease make "Darius Goes West" play more like a hip indie film. Smalley, who also composed and plays the piano soundtrack, and his gang bankrolled the $70,000 film by selling on-screen credits for $10 each and having a hometown barbecue fundraiser.

The on-screen goal was to reach Los Angeles and convince "Pimp My Ride" that Darius' wheelchair should be tricked out just like the cars on their favorite show. The tension? The show won't consider entrants unless they are from California. Hence, the road trip is conspired and completed with a rented, wheelchair-accessible RV, with MTV cast in the role of the villain.

But the ultimate purpose for everyone involved in the project is to further awareness and fund research to find a cure for DMD (Duchenne muscular dystrophy). Even the audience contributes, because 100% of box-office profit goes directly to the cause.

"We refer to this as the orphan's disease because it's less known than cancer, ALS and leukemia," Smalley says. "But the cure is right round the corner. It's close."

In the film, hard facts and predictable mortality statistics are woven in by Dr. Benjamin Seckler, who specializes in treating children with Duchenne, between Darius' adventures and scenes of Seckler's 5-year-old son, Charley, as he sleds through the snow with early signs of the debilitating disease hovering closer every day.

"The gene culprit of this disease has been discovered," says Seckler, with steady resolve. Facing heartbreak on a daily basis, however, has softened his dark gaze. "Human clinical trials are going on now to produce dystrophin (the protein that connects muscle tissue), but what we need is more funding. More research."

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