CDC begins study of bizarre condition

The agency first started hearing from a handful of patients about the unexplained condition around 2002. It now receives about 1,200 inquiries a year about the disease.

The study will look at patients in Kaiser Permanente's Northern California network because the area has been a hot spot of reported cases.

"We are really at the beginning, I think, of a learning curve about what this condition is and all of its potential manifestations," said Dr. Michele Pearson, a CDC physician who is the study's principal investigator.

"Those who suffer from this condition, as well as the family members and physicians who provide care to them, have questions, and we want to help them find meaningful answers," she said.

The study, expected to take about a year, will look at patients who visited Kaiser hospitals in Northern California from July 1, 2006, to Dec. 31, 2007. Researchers will survey probable Morgellons sufferers and collect skin, blood and urine samples.

About 11,000 families in about 16 countries have registered their illnesses with the Morgellons Research Foundation, a group started by Mary Leitao, a Pittsburgh mother who found an abnormal rash on her son in 2001. She named the disease after a reference in a 17th century French medical text of "strange hairs" sprouting from children's backs.

"I hope they find quick answers within this small group of patients that will help the larger group of patients very quickly," Leitao said.

Leitao said she hopes the study will help legitimize the disease, which many doctors have diagnosed as delusional parasitosis and treated with anti-psychotic medications.

Dr. Mark Horowitz, a dermatologist in Torrance who has seen hundreds of patients complaining of Morgellons, said he is hoping the CDC study will settle the uncertainty about the condition.

"I believe it's a real entity," he said, but "I'll be very surprised if they find anything more than a psychiatric disease."

jia-rui.chong@latimes.com