Dr. Joseph B. Michelson: the doctor becomes the patient

IN PRACTICE

Lymphoma turned him into a patient. Health insurance red tape turned him into an outspoken critic.

The nonmobile, hard lump had been on my sternum (the bone in the center of the chest) for many months. As a physician, I had figured it was costochondritis -- an inflammation -- from years ago that had hardened with age.

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A CT scan, however, stated otherwise: "Consistent with metastatic carcinoma or lymphoma. . . . " That meant the lump was likely due either to a cancer that had spread throughout my body or to a cancer of the lymphatic system, which manifests in different locations.

Because the medical group with which I am associated has HMO coverage, I followed the organization's rules as I began to explore my options. At first, I considered this process to be simply an inconvenience. After all, I take care of patients in this system, and I've never compromised the care I administer. Once in a while, I've had to fight on a patient's behalf to offer a medicine or procedure, but I never put those fights in perspective -- nor had my professional treatments refused.

But the delays began almost immediately, when my internist referred me to a surgeon for a biopsy. He demurred. "I won't touch that. You need a thoracic surgeon." Fortunately, a thoracic surgeon immediately squeezed me into his schedule. The pathology disclosed lymphoma. My brain shook into reality. I was now a patient. And I needed to take this patient seriously.

The next step: treatment. I called professional friends to discuss treatment options, then anxiously waited -- for more than a month -- for my oncology appointment.

My mind raced: Was it OK to wait this long to start treatment? Would the tumor progress? Would this delay make recovery impossible?

Because I was so impatient, the thoracic surgeon referred me to an oncologist friend simply so I could ask questions and gather information while waiting. My wife and I paid for this consultation.

At last, the appointment with the HMO's thoracic surgeon arrived. But the doctor's office was in a less-than-desirable part of town. During chemotherapy sessions, which last six to eight hours, how would my wife function here, I wondered? Then, after the oncologist botched and repeated my bone marrow biopsy (which is very painful), my wife looked up his qualifications. He had graduated from, and trained at, a foreign medical school. For a condition so serious, I would have preferred that my physician be the graduate of an American medical school. Other problems followed. Before chemotherapy was to begin, I called the oncologist repeatedly in an attempt to have specific questions answered. Finally, he responded.

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